Just read this troubling, but very real blog on Huffington Post
“Back to School means back-to-hell for Too Many Kids.”
I have Isla going to a new school tomorrow, and it doesn’t feel like the right time. She is set with uniform, bags, labels, cuddly gift arriving today, transition days completed (sort-of), and we’re writing her Morning Routine today as soon as school give us who and where details.
She has, however, started acting out even more- regressing with a baby voice, crawling on the floor, she’s not sleeping, and yesterday she developed a stinking cold that might just throw everything out the window if her asthma kicks in, meaning she can’t start tomorrow.
Our military operation is in place from home, but school have so far done little to help. We still have no formal recognition from the school re her diagnosis, persuing her ECH Plan, or even how they will manage friendship support for her (they put her in a class with NONE of her peers, even when every other professional, and Isla herself stressed how vital it was for her), and we are floundering in a pit of worry right now.
I know we’re not the only ones. Facebook groups I’m part of for kids with SEN are full up these last few days with parents managing this huge load on our own, with no help often from our schools. The summer break can cause so many disruptions for SEN children, and it’s time to recognise that our schools are failing them by not getting in touch with us in the last week, checking plans are in place, our kids are fully informed about their teachers, TA’s, routines, etc. Expecting some SEN children to just put on a new uniform and turn up on the first day of term isn’t fair!
I am not a negative person, I don’t expect the worst, but I do know that just shoving Isla through the front door of a new school tomorrow won’t be pretty, and when they say “She’ll be fine as soon as you’re gone” could mean 1) no she won’t, she will cry lots or 2) she will hold it together, pretend she’s fine, then explode or implode when the day is done.
The new school have approached us seemingly as being over-protective parents, choosing to say “we know children”, not hearing our response which is “with all due respect you don’t know ours”. They chirrup “let’s not create a problem that might not exist, clean slate etc” which undermines Isla’s very real problems and leads to us feeling ill prepared.
As a family with 2 ASD/SEN children, we prepare everything and it’s tiring, hard work, keeps me awake nights. When our schools disappear completely for 6 weeks, and our borough SEN departments do like-wise, then they are letting us all down- parents, and our children. It’s an antiquated system that needs to change, and it makes our SEN-parents job even harder.
Check out some of these awesome blogs and sites if you are also feeling alone and scared right now. They’re all ones I follow:
Please comment below with suggestions of other blogs. It’s nice to feel part of a community.
Good luck these next few weeks- we’re all in this together!
Love Sarah x